Most parents of young children care about sleep and sniffles habits, but heart failure is usually not a concern.
Undoubtedly, he was not on Thomases’s radar when his 2 -year -old son came into a sudden cardiac arrest in midnight in his house in Illinois.
When the child woke up shouting, his parents ran into the room.
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“Listening to him was alarming, because he usually slept strongly, and it was a horrible cry,” Stephanie Thomas said to Fox News Digital.
“When I entered his room, he continued to shout and then the floor face to the cradle.”
Stephanie’s 2 -year -old son and Kris Thomas came into a midnight cardiac arrest in his house in Illinois. (Stephanie Thomas/Osf Healthcare)
At first, the Thomases thought that their son had only one night terror, so Stephanie, a clinical dietitian at the Osf Healthcare Children’s Hospital in Illinois, sat by his cradle with his hand on his back, trying to calm him down.
“When he finally settled, I felt that his breath was slowly stopping,” he recalled. “I took him from the cradle and placed him on the floor. With him unanswered, I felt for a powder and started at CPR.”
“I was petrified and confused about how my seemingly healthy 2 -year -old was in this situation.”
“I was petrified and confused about how my seemingly healthy 2 -year -old was in this situation.”
When Stephanie performed CPR, her husband, Kris, called 911.
Those who respond to the emergencies precipitated the boy at Osf Healthcare. After 11 days of tests, he was diagnosed with Brugada Syndrome, a very rare heart disease that can cause sudden and dead heart stop.

After 11 days of evidence, the 2 -year -old was diagnosed with Bruda Syndrome, a very rare heart disease that can cause sudden and dead heart stop. (Stephanie Thomas/Osf Healthcare)
Although there may be some signs of Brugada syndrome, such as fainting or passing, the condition is often not discovered until a heart stop.
Thomases’s son had a similar incident about a month before the cardiac arrest, who now believe that he could be his first episode.
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“He woke up in the middle of the night with a horrible cry, had some gossip and it was difficult to calm down,” said Stephanie. “It was just a short period and, once it was calm, it seemed” normal “. We assumed it was a night terror.”
Because Brugada Syndrome is often inherited, Thomases were tested with genetic anomalies, but it was determined that their child’s syndrome is a “mosaic defect”, which is when there are two or more sets of genetically different cells in the body.

“Our son acts and seems healthy more than 99% of the time, until his heart enters an arrhythmia that his body and medication cannot manage on his own,” Stephanie Thomas said to Fox News Digital. (Stephanie Thomas/Osf Healthcare)
The OSF team implemented the young man with an EV-ICD (Defibrillator de Cardioverter implantable extravascular), which is placed outside the blood vessels of the heart. It is designed to detect and correct any abnormal heart rate.
This was the first time the device has been implanted in a child at such a young age, said the hospital in a statement.
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From the first episode, Thomases’s son has been hospitalized six more times. Each time an abnormal heart rate is detected, the EV-ICD offers a “shock that saves life” in the heart of the boy.
“Our son acts and seems healthy more than 99% of the time, until his heart enters an arrhythmia that his body and medication cannot manage on his own,” Stephanie told Fox News Digital. “In these cases, it receives a clash of its ICD.”
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The boy has been readmitted to the hospital due to the arrhythmias and the medicine qualification seven times since his initial leave, his mother added.
Sunita Ferns, MD, pediatric electrophysiologist of the Osf Healthcare Saint Francis Medical Center, who deals with Thomases’s son, said that his young patient is now “married to cardiology”.

Parents said it could be difficult to navigate the episodes with a 2 -year -old who cannot understand what’s going on. (Stephanie Thomas/Osf Healthcare)
“We supervise these devices constantly. If we see some arrhythmia in the background, despite the medication we are, we can offer -other technologies,” said Dr. Ferns in the OSF press statement.
“Ablative technologies can help modify the substrate, which is the fabric responsible for bad pace.”
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To help control his arrhythmias, the boy also takes an oral drug composed every six hours, which will take the rest of his life.
Parents said it could be difficult to navigate the episodes with a 2 -year -old who cannot understand what’s going on.

Thomases aims to raise awareness of the importance of CPR training, being alert to warning signs and launching an emergency plan. (Stephanie Thomas/Osf Healthcare)
“The hardest thing is when it says things like,” I can’t use the Blankie elephant because it struck me, “Stephanie said.” It makes these associations shocked and the objects or places that surround it. “
There are specific triggers for the boy’s arrhythmias, Thomases have learned, such as low grade fevers and even slight diseases, like cold.
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“It is vital that we keep it as healthy as we can, which can be a challenge that he is an active 2 year old and having a 4 -year -old,” Stephanie said.
“We assure you to keep up to date with the vaccines of all our family. We do our best to regulate temperatures.”
“It is vital that we keep it as healthy as we can.”
Thomases aims to raise awareness of the importance of CPR training, being alert to warning signs and launching an emergency plan.
As a health employee, Stephanie has maintained her basic life support certification (BLS) for more than 10 years.
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“I have always said that I work with doctors and nurses, so I felt this was not something I would never use, but doctors and nurses were not in my house the night my son came into cardiac arrest, so he left me.”
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